Sickle cell disease

An image of Kevin Wake, a sickle cell disease patient

 

Every day, people living with serious diseases strive to be more than their disease — to be defined by what they can dream and hope and achieve, not by what limits them. Our commitment to people with serious diseases is uncompromising and goes beyond our research and development (R&D) and medicines. 

Understanding sickle cell disease: Real stories, real impact

Meet sisters Nedda and Renna, the Dahn family and Kevin — all battling against sickle cell disease (SCD), a serious and life-shortening blood disorder. Watch the videos below to hear what it’s like to live with SCD, including the challenges and impacts of the disease.

An image of sisters, Nedda and Renna, from Sweden, who are both living with SCD.

Understanding SCD

Sisters, Nedda and Renna, from Sweden are both living with SCD. Find out more about their experiences and complications living with SCD.

An image of Mapillar Dahn and her three children sitting on a couch while smiling at the camera.

Caring for three Sickle Cell Warriors

Mapillar Dahn is the mother of three daughters living with SCD. This video is a glimpse into the strength it takes to hold a family together with SCD.

An image of Kevin Wake looking at the camera while wearing a pink shirt.

Daily life with SCD

Kevin opens a window into what life truly looks like living with SCD. From small routines to big challenges, his story brings the reality of SCD to life.


Working with the SCD community

We are committed to investigating and advancing new approaches to treat SCD. To achieve that mission, we work with organizations that help people with SCD live active, full lives. 

Vertex seeks to identify opportunities where we can support, empower and learn from the sickle cell community to ensure their voices are heard and represented in our work.

Dr. Lakiea Bailey, sickle cell warrior, advocate, educator and CEO of the Sickle Cell Consortium, on a panel with Vertexian Dr. Bill Hobbs, VP, Clinical Development


Dr. Lakiea Bailey, Sickle Cell Warrior, advocate, educator and CEO of the Sickle Cell Consortium, on a panel with Vertexian Dr. Bill Hobbs, VP, Clinical Development.

Supporting the SCD community

We are honored to support several sickle cell community partners to raise awareness and understanding of SCD, and work toward a brighter future for warriors and their communities. We are also proud to work with and support many organizations in the sickle cell community including:

 

 

Sickle Cell Disease Partnership logo
Sickle Cell Disease Partnership

In addition, we are proud to be a founding member of the Sickle Cell Disease Partnership, which brings together members of the patient, provider and biopharmaceutical communities to advocate for policies that improve quality and access to care for the Sickle Cell Warriors. 

Learn more about the partnership here.
 

 


 

Learn about our work in SCD

To learn more about our SCD studies in the U.S., visit our clinical trials website. For information about non-U.S. sites, visit clinicaltrials.gov.