Our stories

 

Discover more about our relentless efforts to improve the lives of patients, employees and our communities.

 

Discover more about our relentless efforts to improve the lives of patients, employees and our communities.

All posts with Beta Thalassemia

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An image of Vertexians with the thalassemia community at the 2023 Cooley’s Anemia Foundation Care Walks
Patients
Research and beyond: Our commitment to the beta thalassemia community
3 min read

We’ve been working with the beta thalassemia community since the inception of our research program in 2015. Learn more about our efforts and commitments around the globe.

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An image of a man looking at a computer screen with a phone in his hand with a purple watercolor effect on the outside of the image
Patients
Unraveling the hidden impacts of sickle cell disease and beta thalassemia
4 min read

Understanding the real-life impacts of managing SCD and TDT.

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An image of a man and a woman in a kitchen looking at a computer screen while they cook food
Patients
Behind the curtain, a look into the lives of people living with serious illness
3 min read

Learn how we explore the daily lives of those living with debilitating disease to help inform our mission.

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An image of Joan Lambright and Tracy Antonelli
Patients
Give blood and keep the world beating: Voices of gratitude on World Blood Donor Day
4 min read

On World Blood Donor Day, hear from two individuals living with sickle cell disease and transfusion-dependent beta thalassemia as they share their stories, shed light on their struggles, and emphasize the impact blood donation has had on their disease and quality of life.

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An image of three people speaking at a conference
Patients
Embedding the patient perspective: Using research to understand patient experiences
4 min read

Learn how our teams utilize real-world research to understand the lived impacts of sickle cell disease and beta thalassemia.

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