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Discover more about our relentless efforts to improve the lives of patients, employees and our communities.

 

Discover more about our relentless efforts to improve the lives of patients, employees and our communities.

All posts with Sickle Cell Disease

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An image of a man and a woman in a kitchen looking at a computer screen while they cook food
Behind the smile, a look into the lives of people living with serious illness
3 min read

Learn how we explore the daily lives of those living with debilitating disease to help inform our mission.

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Embedding the patient perspective: Using research to understand patient experiences
4 min read

Learn how our teams utilize real-world research to understand the lived impacts of sickle cell disease and beta thalassemia.

An image of a man sitting in a hospital bed staring out of a window
New data shed light on health inequities in sickle cell disease
2 min read

Individuals living with severe sickle cell disease report higher exposure to health care prejudice, according to new research by our Health Economics and Outcomes Research (HEOR) team.

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We are with you: A message to the sickle cell community
3 min read

Vertex is committed to the sickle cell disease community. Beyond our science, it’s about showing up and locking arms with the community to work together toward meaningful change.

An image of a man looking at a computer screen with a phone in his hand with a purple watercolor effect on the outside of the image
Unraveling the hidden impacts of sickle cell disease and beta thalassemia
4 min read

Understanding the real-life impacts of managing SCD and TDT.

An image of Joan Lambright and Tracy Antonelli
Give blood and keep the world beating: Voices of gratitude on World Blood Donor Day
4 min read

On World Blood Donor Day, hear from two individuals living with sickle cell disease and transfusion-dependent beta thalassemia as they share their stories, shed light on their struggles, and emphasize the impact blood donation has had on their disease and quality of life.

Water color image of sickle cells
A new Partnership to ignite change for sickle cell disease
3 min read

The Sickle Cell Disease Partnership is a multistakeholder coalition, launched in June, which works to improve care and access for people living with sickle cell disease. Here, Chief Patient Officer Amit Sachdev discusses the partnership, its goals and the reasons it was founded.

science based logos on watercolor
Working together to address disparities in rare diseases
2 min read