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Virtual Roundtable Explores How to Maintain CF Therapy as Part of Your Daily Routine
Gunnar Esiason to Moderate Online Panel Discussion July 11 at 7:00 p.m. EDT
Whether you are a parent overseeing the care of a child with cystic fibrosis (CF) or a young adult with CF pursing educational and career goals, maintaining daily treatments can be challenging.
On July 11 at 7:00 p.m. EDT, we invite you to join our next virtual Community Roundtable: Maintaining Therapy as Part of Your Daily Routine.
Gunnar Esiason, program director of the Boomer Esiason Foundation, will moderate a panel of people living with CF, caregivers and advocates, to discuss managing treatment across various life stages and transitions from childhood to young adulthood. Click here to register for the roundtable. Gunnar and the panel will explore questions like:
- When do you have children start taking more responsibility for their care?
- How do you handle disruptions in your routine?
- How do you manage daily diet and exercise?
Roundtable Participants Share their Perspectives
Gunnar Esiason was diagnosed with CF when he was 2-years-old. Since then he has worked with his family and friends to put a face on the rare disease that impacts only 30,000 people in the US. He went to Boston College, where he accomplished his goal of graduating on time. Now, besides fulfilling one of his life’s passions by coaching high school hockey, he works full time at the Boomer Esiason Foundation where he officially joins his father’s fight against CF. He shares perspectives on living life with CF in his Own It and Making it Matter! Podcasts.
He will be joined by:
- Lesley Lykins, mother of her preschool-aged son Cohen who is living with CF.
- Wells Clark, a high school sophomore who lives an active life with CF.
- Jeanine Samels and her daughter Maggie, who is living with CF and is a sophomore at Indiana University Bloomington.