You are here

Emily’s Entourage Honors Vertex with Inaugural Trailblazer Award

 

December 15, 2017


Emily Kramer-Golinkoff, founder of Emily's Entourage, and Paul Negulescu, Senior Vice President and San Diego Research Site Head at Vertex.

We were recently honored as the first recipient of Emily’s Entourage's new Trailblazer Award for our leadership in the fight against cystic fibrosis (CF). Paul Negulescu, Senior Vice President and San Diego Research Site Head, accepted the award on behalf of Vertex during Emily’s Entourage's annual event in Philadelphia on December 2, 2017.

“Emily is an amazing person who inspires all of us at Vertex to press toward our goal to deliver therapies for all people with CF,” said Paul Negulescu. “We are honored that Emily and her Entourage recognized us with this wonderful award.”

The Trailblazer Award was created to recognize innovative change-makers in CF research and drug development. It is presented to an individual or organization that has partnered with Emily’s Entourage and demonstrated courage, tenacity and out-of-the- box creativity to push conventional boundaries and propel potential research advances for people with CF.

"We are so excited to name Vertex the inaugural recipient of the Trailblazer Award in recognition of their advances in cystic fibrosis."

- Emily Kramer-Golinkoff

"We are so excited to name Vertex the inaugural recipient of the Trailblazer Award in recognition of their advances in cystic fibrosis, and especially for their support for the mission of Emily's Entourage,” said Emily Kramer-Golinkoff, the founder of Emily’s Entourage who also is living with CF. “We are grateful beyond measure for their belief in us, their support, and their "all in" commitment and goal to treat all people with CF.”

Emily Kramer-Golinkoff is a true champion in the fight to conquer cystic fibrosis across the country and around the globe. As both a CF patient and tireless advocate, she has dedicated her life to finding a cure for CF – starting a unique nonprofit, Emily’s Entourage, in 2011 to raise money for research for nonsense mutations of the CF gene, which affect roughly 10 percent of CF patients. To date, Emily’s Entourage has raised over $3 million for CF research. Emily was honored at the White House in 2015 as a "Champion of Change" in Precision Medicine and has been featured on CNN, PEOPLE and TIME magazine websites.